The city of São Paulo will have, at 19:30 (Brasília time) this Wednesday (05), a show of “drone ballet”. There will be 20 colorful drones “dancing” at Parque Estaiada, in the south side of the city of São Paulo. The purpose of the action is to raise public awareness of Pulmonary Arterial Hypertension (PAH).
In addition to the “steps” of the drones, residents and visitors will be able to hear a soundtrack with a range of 30 meters. In addition to those who are in person in the region, Brazilians will be able to watch the event in a broadcast that will be held by Instagram, on this link.
Among the images that can be seen in the sky are the acronym of the disease, the lung and the butterfly, symbol of the “Life deserves a breath” campaign, launched in November 2020 by Janssen, a pharmacist at Johnson & Johnson, in partnership with entities such as the Brazilian Society of Pulmonology and Tisiology (SBPT).
The butterfly, in this case, represents “a new breath, a new beginning that patients gain with the early diagnosis and when they find and adhere to the appropriate treatments”.
Drone ballet takes advantage of today because this is the date when World Pulmonary Hypertension Day is remembered. The campaign A Vida Deserves a Breath aims to bring information about the disease to doctors, patients and the general public to contribute to the proper diagnosis and treatment.
Previously, an urban intervention in Largo da Batata (SP) had already been organized with 5,000 colorful origami butterflies, representing patients who live with the disease in Brazil.
About the disease
Pulmonary Arterial Hypertension is a rare, serious and progressive disease that affects the small blood vessels in the pulmonary circulation. It causes the pulmonary arteries (which carry out communication between the heart and lungs) to narrow, causing an increase in blood pressure in the lungs and a dilation of the heart, which can result in heart failure and death.
The first symptoms of PAH are mild and common to other more frequent or known respiratory conditions that limit the ability to breathe, such as asthma, for example. This makes it difficult and often delays the diagnosis. From the first symptom, it may take up to 2 years for the patient to receive the correct diagnosis.
To reach the diagnosis, in addition to the clinical history (signs and symptoms that the patient mentions), it is necessary to carry out tests to evaluate the heart, such as echocardiogram, and the lung. Finally, right cardiac catheterization is necessary and essential to close the diagnosis. Although PAH is more common in young adults and women, it affects people of all ages.
Although there is no cure, PAH has treatments that can improve the symptoms and quality of life of the patient, in addition to containing the progression of the disease. The most commonly used traditional therapies are oxygen therapy (extra oxygen to aid breathing), and anticoagulant, diuretic and / or vasodilator medications.
After the diagnosis of the disease, the PAH patient still faces more challenges in his health journey – access to appropriate treatment. The Clinical Protocol and Therapeutic Guidelines (PCDT) for PAH disease has not been updated since 2014, being outdated in relation to the inclusion of new specific treatments for the disease. Combination therapy is also not part of the Protocol, currently only the monotherapy regime is covered by the Unified Health System (SUS). The purpose of combination therapy is to bring the patient to the low-risk setting and thus prolong his life.
“It is of great importance that at the sign of symptoms such as shortness of breath, weakness and tiredness, people seek their doctor to obtain an early diagnosis and evaluate, together with the specialist, what is the appropriate treatment for their current condition and that both (doctor and empower themselves to participate in a new update on the treatments for the disease available in Brazil ”, says Dr. Caio Fernandes.